How will my life change?
Do I have to tell people?
Choosing a doctor
Adjusting to 'the news'
Affected, not infected
HIV & Youth

If you decide to tell…

Telling people you care about that you are HIV-positive can be totally overwhelming and scary. But, sometimes telling someone can make things easier. Some of you have already told people and have family and friends that support you. But some of you haven’t told anyone you are HIV-positive.

Deciding who to tell and when or what to say is hard. If you decide to tell someone think it over first. Remember, people may or may not have a good reaction to the news.

Talking to people to get advice about how to talk about stuff can be really helpful. If you’re not sure who to talk to here are some ideas of people other people have talked to: a counselor, doctor, nurse, social worker or other people who have experienced the same situation. (How did they go about telling people their news?)

If you decide to tell family & friends you could also give your family some educational materials that will help them understand HIV. Check out the Getting Help section for more information on where to get HIV information.

Friends

“I was really scared to tell my best friend that I had HIV, but I talked to my mom and she told me that if I wanted to I could. So I did and she didn’t freak out or anything – she just asked me a bunch of questions. It was good to talk about it. …now she knows and is cool with it so I feel good and that’s cool”

"I think that friends come and go so I don’t trust any friends enough to tell them I am HIV-positive”

“When I take my meds at sleepovers and stuff I just tell my friends that I have a problem with my immune system or that I have a blood disorder. My nurse told me that it was better to tell part of the truth so I remember what I tell people and I feel less guilty about lying.”

You don’t have to tell your friends that you are HIV-positive. Friends may come and go so you may want to think about whom you trust enough to tell. Telling people is a very personal decision.

Family

Some of you have families that already know you are HIV-positive. In fact, sometimes you are not the only person in the family who has HIV.

“I wanted my parents to be involved in everything. They are a huge support to me. I don’t know what I’d do without them”

But, some of you haven’t told your families. Telling your family that you're HIV-positive can be really hard. Your family may not know how to react and may have a hard time. But lots of families are really supportive.

Remember, you have the right to decide how much you tell anyone, even your parents.

If your home doesn't feel safe or you're no longer living with your family, there are many places out there that can help you. [Check out Getting Help]

Dating

“I’ve dated lots of guys but I haven’t told any of them I am HIV-positive. I figure they don’t need to know unless I am actually having sex with them – which I’m not!”

If you are going to have sex you need to always protect yourself and your partner by having safe sex with a condom. But you need to tell your partner you have HIV because you could give it to them. It can be hard to talk to someone you really like about your HIV. You are not alone; you can get chat with a counselor or someone from an HIV/AIDS organization in your area to make it easier. [Check out Getting Help]

If you get HIV later on you may want to think about telling past sexual partners so they can get tested too (especially if you had unprotected sex). In some provinces, you may be able to get help from a public health worker if you want to tell your past or current sexual partners without telling them your name. [Check out the Safer Sex & Getting Help for more information]

School

“My guidance counselor took me out of class this one day and asked if I was OK because I had missed so much school. I have to miss school for my doctor’s appointments at the clinic. Inside I felt mad and scared. There was no way I was telling a teacher! So I said ‘no’ and told her I’d let her know if I wanted to talk”.

You do not need to tell anyone at school that you are HIV-positive. If you cut yourself teachers and staff should wear rubber gloves when helping any children.

Medical Professionals

“I go to a HIV-specialist so he knows I have HIV and the other people at the clinic know too – but that’s it.”

“When I got sick I was in the hospital for a while and after I got out I had to get Homecare to help me out. My family decided not to tell the nurse I was HIV-positive because the nurse is supposed to be safe around me anyhow. I just don’t want a stranger knowing. The nurse just knows I have a blood disorder.”

You don’t have to tell your Doctor, nurse, social worker, homecare provider or any other healthcare professional you are HIV-positive unless you want to tell them. But, if you don’t already have a doctor or HIV-specialist helping you stay well you may want to think about telling your doctor so you can get the medication you need to stay healthy.

Do I have to tell anyone?

This is a very simple question that has a hard answer. There are two things to think about before you decide to tell someone:

  1. What does the law say?
  2. How do you feel about telling?

The Law
There are two different laws that talk about HIV.

Criminal Law:

The only person/people you have to tell you’re HIV-positive is your sexual partner(s).

The Supreme Court of Canada says that you have to tell your HIV status to your sexual partners if you have unprotected sex (sex without a condom). If you don’t tell them you can be charged – even if your sexual partner doesn’t get HIV.

Generally the Criminal Law says that If you have unprotected sex and do not tell your HIV-positive status to your HIV-negative partners, you have committed an assault UNLESS it can be confirmed (in the courts) that the partner would have consented to the unprotected sex even if he or she had known about your HIV status before. (Taken from the Cuerrier case)

Public Health Law:

This is a provincial law. Every province has different Public Health laws. So you need to look into your province’s public health law for more information. There are some areas where the local public health office calls up the HIV clinic on a regular basis to ask for updates about their HIV+ patients. Overall, there is an enormous variation from health unit to health unit

 
 
 
 
Hospital for Sick Children University of Toronto Positive Youth Outreach CATIE