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Andrew, infected
at age 18, from Ottawa
A boyfriend infected me; at least that's
what I think. I always practiced safer sex,
except with him. I assumed he had been tested
because he was a home care worker. I had
been tested a couple times before. Once
during a conversation he made it sound like
he'd just been tested. So I went and I was
surprised to find out that he hadn't been
tested and that I tested positive. Later
on, after we broke up, I found out he'd
had past lovers die of AIDS.
For the next few years I just lived as if
today was my last day. I had a really bad
doctor and I was convinced I only had three
years to live. So I lived like a crazy man.
I did so much partying; I should have O.D.-ed
twenty times over. I moved away from home
to go to university, it was my only way
of moving out of the house. But I never
went to class. I had to get doctors' letters
for the university to have the first year
and half wiped off my transcript. I had
no point in going to class because I would
never graduate. To me putting in eight years
to get three law degrees and a BA in psychology
wasn't worth it because I wouldn't see the
end.
Birthdays and New Year's Eve used to be
very bad for me because I was convinced
I was only going to live to be 21. One New
Year's Eve, I was 21, and I kept saying
there's something wrong, there's something
wrong. And I realized I wasn't depressed
about the New Year. Mary Tyler Moore was
on TV and it was the song "You're Going
to Make it After All" and I said "Oh
my god I'm going to live!"
My friends are basically my networks. My
family, I don't tell them as much as my
friends. It's more than the HIV issue: my
mother doesn't tell anyone I'm gay, and
then on top of that no one knows I'm positive.
At the beginning she used to separate my
dishes. She didn't tell me she did it, but
I could tell in the cupboard, the dishes
were separated. Now my mother wears an AIDS
ribbon and raises money for charities. She's
changed to a certain extent. My mother still
can't say HIV.
At first, waiting for blood results was
terrifying. It was like waiting to find
out how much longer I have to live. Now
they take my blood, and I just wait. I've
adapted to it. I've also made the decision
to not take medication. My counts are still
good, and I may change my mind down the
road. But my mindset now is that I will
never take the pills. Even though I know
not everybody gets side effects, I still
know how bad it can be and I'm not willing
to give up my quality of life for quantity.
If you tell me I'll live to be 80 with them
or 40 without them, I'll take the 40, if
the 80 means the side effects.
HIV has taught me more about who I am and
what I can do. At the beginning, I saw it
as a death sentence. Now, I can see there
was a purpose for it. I realize I wouldn't
have done the things I've done, I wouldn't
have met the people I've met, wouldn't have
been to the places I've been. Not that I
would recommend this, but I've taken it
and I've taken the energy and done something
productive. I've been really lucky. I was
the youngest executive director of an AIDS
organization in Ontario, I spoke at the
opening ceremony of the World AIDS Conference
in Geneva, authored and presented abstracts,
I've been appointed to the Ministerial Council
on HIV/AIDS by Minister Allan Rock, I've
met the doctors who discovered HIV, royalty
and foreign dignitaries. If I had been sitting
in a classroom and studying law, I don't
think I would have grown as much as I have
living with the disease and doing volunteer
work.
Maybe I'll go back into law, but I will
probably get into government or politics.
My friends joke that my name will be on
a ballot by the time I'm 30. They even say
I talk like a politician. I always joke
that I'll be Governor General of Canada,
that I'll be the first guy on the throne
with a guy on the throne beside him.
You can live with HIV, but it's not a guarantee.
Although I have a positive outlook, I still
know I may die. I've lost my credit, I've
spent everything I had and wasted opportunities.
I've built my way back up. I don't have
any regrets because everything I've done
has made me who I am. But getting to the
point of being able to say that was a long
road."
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